8-20-2014 21st Infusion and doctor appointment update

Yesterday was Sarah's 21st infusion.  In fact, we had a triple infusion party!  I lined up all of the kiddo's infusions so they would be on the same day.  Sarah gets hers every other week, but the other two get them every week.  Wednesdays work best since that is generally the one night a week we have free.  And it is a 2 1/2 to 3 hour process from the time we have to pre-medicate until the infusions are finished.  Zach and Anna get theirs weekly, so it is only every other week, so it is only every other week that all 3 of them get them at the same time.  (Believe it or not, the TV isn't even on.  They are just zoned out.)

Sarah is still doing so well!  Monday, she had a follow up with the nurse practitioner (who we adore) at the allergy, asthma and immunology office.  We almost never get to have "follow up" appointments because we have historically been in there frequently for sick appointments.  So this in and of it self is HUGE.  While we were discussing bloodwork, Sarah said "What about my T cells and B cells.  Were those okay?"  I asked how she knew about those.  She said "I've been reading the books that come with my infusion stuff."

Sarah has been off her asthma meds since we got her infusion dose right and she quit getting sick.  So really she has been off it since May.  Her asthma numbers look better than they did before when she was on all sorts of medication!  She also has not needed an antibiotic since then either, which is a really long time for her!  We are so thankful this is working!