I didn't update this with the last infusion. Sarah was feeling crummy again. Right before this infusion, we talked to the doctor, and we decided that we would up her dose from 10g to 12g every other week.
This infusion (at the end of April) was still at the dose of 10g (in 50mL). The infusion went well and was finished in about an hour and a half. The night after that, Sarah had a soccer game. She was worried because she is often sore and not up to doing something like playing soccer the next day. She ended up playing one of the best games she has ever played in her short soccer career. She scored two goals and was aggressive.
She has still be battling this same crud. She is coughing and has a runny nose and just generally not feeling great. She did stay home from school yesterday just to regroup, get some rest, and try to feel better. She went to school today and participated in field day.
We did her infusion tonight. We didn't get started until after 7pm, and it was 12g in 60mL, so it took longer than it was taking. It was close to 2 hours before she was finished. But, it looked really really good. Hardly any swelling at all with this infusion. So we will see how she feels tomorrow. Her next infusion will be May 27.
Jason and I are renewing our vows in June, and Sarah is planning to be a flower girl (along with Anna, and they will be escorted by my nephew Robby). She is also planning to sing a song during the ceremony. She will do a great job!
