Sarah at Ironwoods Park 10-2016

Sarah at Ironwoods Park 10-2016

Thursday, October 2, 2014

10-1-14 Sarah's 24th Infusion

So Sarah has her first infection since we got to the 12g dose in April.  First infection in 6 months.  I don't know if you can fathom this, but previously, these 6 months would have equaled at least 6 rounds of antibiotics, probably at least 2 rounds of prednisone, advair twice a day, and albuterol/breathing treatments regularly.  Not to mention that both Joshua and Jason had a nasty respiratory thing that probably would have ended up with Sarah having pneumonia and a high probability of her being hospitalized with as sick as they were.  Instead, she has been on bi-weekly infusions of a solution made from plasma to help her be able to fight off infections like most people are able to do.

This infection started out as an allergy to ragweed, and now she has a little cough, runny nose, and a slight fever.  But her lungs are clear, and her temperature isn't anywhere near as high as it would normally be!  So she will start on an antibiotic today and hopefully be feeling good as new in time for her soccer game on Sunday afternoon.

Yesterday, Sarah had her 24th infusion.  We have been giving them since November of 2013, every other week.  This one took about an hour and 45 minutes to infuse.  She did great, and it doesn't even really affect her anymore.

During Sarah's infusion she likes to draw or play games.


This was immediately following her infusion.  Today you can't even tell.