05-28-14 Sarah's 15th Infusion

Amazing that we have already been doing these infusions for over 6 months with Sarah!  They have made such a big difference!  Sarah is amazing.  She has gotten used to having these done, and she doesn't complain or ask why any more at all.

We got everything ready and started her infusion.  She usually watches a show, reads, or plays on her tablet or DS.

 

 

This infusion, I had to run an errand.  Jason wasn't home and I wasn't comfortable leaving her home with the boys while this was going on.  I told her she would have to come with me.  Usually she cries and carries on.  This time, she just came with me and when it was done, we went into another room and removed the needles.   This infusion took about an hour and 40 minutes.  It was the 12 grams (in 60 mL of fluid) dose.  This picture is from when I took the needles out.  By the next morning, the swelling was significantly better. 

She still complains of soreness for a day or two afterwards, but it doesn't slow her down anymore.  She can still usually do gym and play at recess and play in soccer games.  Her next infusion is due on Wednesday, June 11.