Sarah has had a few weeks that she has been well, which is actually really good. She has started with a bit of a runny nose and slight cough the past couple of days, but I am praying she will get over it on her own and without too much fanfare. It is amazing...since starting the subQ IG Therapy, she has only missed ONE day of school. Since November. That is absolutely incredible!
We put her infusion off one day this week. On Wednesday, she spent several hours with her best friend from school and wanted to do the infusion Thursday. We have a 3 day window one way or the other to do it, so that was fine. Wednesdays just generally work best for us as there is no soccer or anything that night. I was more concerned about moving it to Thursday this week because she has her first soccer game on Saturday, and usually she is quite sore for a few days after the infusion.
This infusion went really, really fast! It only took an hour and 20 minutes. That was 20 minutes faster than the time before, which was 20 minutes faster than it had been. When we turn the pump on, it is painful to Sarah when the medicine first starts infusing. After just a few seconds, it doesn't bother her anymore.
This was immediately after the infusion
These were about 30 minutes later
As you can see, the swelling really went down quickly this time. She still has some, but not too bad. She isn't sore at all, and even was jumping up and down today saying "look, I can jump! And I can touch my stomach and it doesn't hurt!" She was so excited that it was so good this time. We definitely know there are people praying for her through this process as we continue to see improvement. So thank you all!
Sarah's next infusion will be Wednesday, April 16.
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