Sarah has still not gotten over her crud. After running a fever off an on, and coughing a ton, along with a runny nose, I took her back to the doctor Friday. (She gets frequent sinus infections and left untreated, they drain into her lungs and then turn into pneumonia. Her lungs were getting to the point that they would sound "junky" and she would be wheezing, but if she coughed, she could clear them. Often within a few days, it will turn into pneumonia.)
The good news is that her numbers from her spirometry test were the best they have ever been! So her maintenance inhaler for her asthma is working really well. But, her lungs did sound icky until she coughed, her nose is full of "gunk", and you can tell just by looking in her eyes that she feels crummy. The doctor put her on an antibiotic for another sinus infection. She just doesn't get over stuff on her own. Ever.
This doesn't have anything to do with Sarah's immune deficiency, but Sarah had an eye appointment this morning. It turns out that one of her eyes is way worse than the other. She needs to see a pediatric optometrist to find out if he wants to do visual therapy on her or just put her in glasses. We will call Monday to make an appointment.
Sarah's next infusion will be Tuesday, December 24. When I took Sarah in on Friday, the doctor and I talked about upping her dose on the subQ IG, and also maybe adding a 3rd infusion site instead of the 2 she has now. We also talked about moving her to weekly, but still upping her dose too. She was going to talk to the nurse and the pharmacist and see what the plan is. We should know more next week.
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